I’m Jen Moore, aka @jen.dometriosis

A writer, speaker and campaigner committed to raising awareness of endometriosis and adenomyosis.

Based on current averages, if you have your first endometriosis symptom today you would
receive your diagnosis on:

November 20, 2032

Accurate, up to date knowledge, delivered with empathy at its heart.

My first symptom was when I was 11 years old. I vividly remember being in so much pain that I was not able to stand. Despite countless doctors visits, it took two decades to receive a diagnosis of endometriosis, adenomyosis and fibroids. Due to the horrendously long diagnostic delay, the endometriosis had progressed to the point where organ failure was an imminent risk and a hysterectomy was the best option for the adenomyosis. After these diseases took so much from me, I decided to dedicate my time and energy to changing things for others. So that, hopefully, future generations do not have to suffer like we have.

About Jen

Jen Moore, aka Jen.dometriosis on social media, is an endometriosis and adenomyosis educator, speaker and campaigner. Following her 22 year long battle for a diagnosis, she now helps others suffering with these conditions, as well as working to create change on an institutional level. 
 
She has worked with the BBC, NHS, University of Cambridge, and global pharmaceutical companies; as well as contributing to research, books and consulting for national charities. Jen is a UN Women UK delegate for the 68th Commission on the Status of Women, where she is determined to include endometriosis and adenomyosis in these vital and high level discussions. 
 

Jen is also the founder of two Endometriosis based research projects. The first, Endo Education, is looking at the current state of medical teaching in the UK when it comes to endometriosis. The second, the They Said What?! project is a deeply personal piece of work, collating the lived experiences of medical misogyny faced by those suffering with the disease.

Inviting Jen to speak at The Future of Endometriosis conference was one of the best decisions I made for the whole event. Jen is a fantastic speaker, a complete natural, and has a unique ability of connecting with the audience on a personal level. Although the topics she was sharing were deeply personal and painful experiences, she was able to convey them in a lighthearted, relatable and non-triggering way. She is also a beautiful person, inside and out, is wonderful to work with and I’d partner again with her in a heartbeat. Thank you Jen for everything you do and being a shining light for the community.

The Future of Endometriosis Conference

Stay in touch with Jen 

If you would like to be informed on events Jen is attending, updates on her projects and how you can get involved, sign up below.

Jen has turned her deeply personal and painful experience into a commitment to inform others and advocate for change. She’s an inspiration!

Shannon Cohn

Award Winning filmmaker and social impact strategist​